My special needs children have conquered the world Not really, though it does sometimes seem like it. It’s both the curse and the blessing of having special needs children, this reality we live in where everything is harder. Our friend’s kids crawled, walked, and talked ahead of schedule. We were overjoyed when ours rolled over…
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Category Archives: Rare Diseases
My Children have Overcome, Part 2 (Part Andy!)
My special needs kids have overcome the world, part Andy Like most special needs families, we have dealt with many specialists, therapists, emotional turmoil, challenges, and blessings. And, like many other special (awesome!) families, we’ve dealt with it for multiple kids. And, like so many other special needs families, my family’s story can’t easily be told in…
Special needs children don’t always come first
Medicaid and the Reality of special needs dentistry A more in-depth look at a recent report and other data. In case you didn’t already know it, being poor can cost you in more than dollars; and having special needs can cost you even more. In a new study released by the journal Pediatrics, kids on…
Rieger Syndrome – Neat Resource for Parents and Researchers
I don’t often find a new resource worth getting this excited over. Though I am waiting for a response back from the folks at this site, I would like to encourage anyone looking for a snapshot search of the information available on their diagnosis to check out WrongDiagnosis.com – Here’s why:
Research: Rare Disease Breakthrough and the Hope it Means
Rare Disease in the Moody world It’s not often I can talk about the rare disease my family shares and relate it to some real news in the research front. My guys hit Disney’s Magic Kingdom ready to see it all. Here, Andy and Bobby pose in front of the Castle at Magic Kingdom. I…
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