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My special needs children have conquered the world
Not really, though it does sometimes seem like it.
It’s both the curse and the blessing of having special needs children, this reality we live in where everything is harder. Our friend’s kids crawled, walked, and talked ahead of schedule. We were overjoyed when ours rolled over by six-months-old. Took pictures when they walked at two (three)years-old.
Our kids have overcome this world and their way-too-many diagnoses, because they prove daily that they are so much more than any diagnosis or actual ‘special need.’ I realize I have been lax in sharing more of my kids with you. If you knew just how much they have achieved, you would see what I see when I look at these awesome guys.
This #SpecialSaturday I encourage you to think about what your child has overcome. To help you with this, I thought I would re-introduce you to my amazing guys.
Mini-Moody Bobby–12; Special Needs–0
“There’s something wrong with his eyes.”
Born almost blind, with eyes that were milky white instead of the supposed-to-be brown, Bobby spent his first month in and out of the regional pediatric eye specialist’s clinic. He was just around a month-old when they realized he had a rare disorder called Rieger Syndrome. At the time all we knew was that Bobby not reacting to the world around him and we were desperate for answers. Over the following years, we would fully realize Bobby’s uniqueness even as we welcomed Andy into the family.
At two, Bobby was having hundreds of seizures a day, unnoticed but not without consequences. By the time we received his diagnosis of Epilepsy and began drug therapy. His special needs piled up even as his vision improved. He faced eye surgery and exams under anesthesia, EEGs, daily therapy, and the adoration of most who met him. Bobby, it seemed, was a charmer.
Today, he’s proven many experts wrong, since at 12-years-old he walks and runs (carefully), talks (sometimes so much more than I would wish!), and is continually making progress. He has overcome the blindness of his birth and, while he is legally blind, he sees more than most people I know. The experts say his functional vision (what he actually uses) is astounding for someone with such vision loss.
I tend to agree–he is a truly astounding mini-Moody.
This is part one of my special needs kids overcoming the world, just in time for #SpecialSaturday. I invite you to come and learn about the other mini-Moodys later today in Part 2.
What have your special needs kids overcome?
That’s the question for this week’s Special Saturday awareness campaign and if you have a post or a tweet you can add it to the list below. Let’s share a truly amazing list with the world by sharing the URLs for tweets, Facebook posts, blog posts, and other articles that complete the sentence: My (special needs) kid(s) have overcome [fill in the blank!]