Home » Epilepsy Awareness is for Every Day, Not Only Purple Day
I purposely waited a little while today to start posting for Purple Day today, wanting to make a point that Epilepsy Awareness … is part of our lives, every day. While Purple Day is important and I stand proudly with others to celebrate and spread awareness on this day, we can’t use this occasion to ignore the fact that Epilepsy is a reality that our family … every … single … day.
Not just my family, but millions of families deal with this reality. We watch our children hurting, scared, and confused. We watch our children regress. We watch our children lost consciousness … stop breathing … turn blue.
Over 50,000 people die each year from epilepsy and epilepsy-related causes, as my friend Jessica Smith compiled and reported last year on her blog, Living Well With Epilepsy. 50,000 people
In the back of my mind, in the back of so many other parent’s minds, is the fear of SUDEP, or Sudden unexplained death in epilepsy. I watch one after another family in my Epilepsy groups from week to week deal with sudden death. I’ve written about our own experiences with Logan’s seizures as he’s stopped breathing, as I’ve had to give him rescue breathing … you should never see your child turn blue. NO parent should ever see their child turn blue, should lose their child to a disorder as insidious as Epilepsy.
Many people still believe that seizures don’t kill, that those living with epilepsy just have to deal with the occasional seizure. They might picture the stereotypical Grand Mal seizure (made infamous on TV but far from realistic). The reality?
When you understand the devastation of this diagnosis, the magnitude of its effect, how can you not want to support epilepsy awareness, not just on Purple Day, but every day? Right alongside the millions of us dealing with Epilepsy. We don’t get to take a day off. Our fight doesn’t end at the stroke of Midnight.
Join us, in ensuring that Epilepsy Awareness is for EVERY DAY, not only Purple Day, won’t you?
Join the Epilepsy Awareness, More than a Day, A Choice Linky: