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Facebook Special Needs Connections for Epilepsy
Groups and Pages are growing at a phenomenal rate on Facebook, so making special needs connections there for your Epilepsy Support needs, or even to help support others dealing with Epilepsy, is easier than ever before.
I’ve been blessed to find a few Pages and Groups on Facebook that provide a true community atmosphere for their fans, the parents and individuals dealing with Epilepsy. For this first Connections post of the New Year, I wanted to highlight just a few of the special needs connections for Epilepsy I love on Facebook.
My hope, is that you would link to other pages and groups you have found particularly helpful, especially since this list isn’t considered exhaustive by any means. If you comment here or on Facebook/Google+/Twitter with other Facebook Connections for Epilepsy support and awareness, I will keep a running list at the end of this post, so that this can become a resource that continues to grow.
Epilepsy Awareness on Facebook – Pages That Make a Difference
A bit of a twist with this active page, since it started as an effort to inform and help those interested in taking part in a clinical trial of a new drug for Epilepsy control.
This page has embraced the community it serves, creating a true welcoming atmosphere for their fans, and for those who come looking for information and support.
This is the official page for the Epilepsy Foundation, also the brainchild of Epilepsy Awareness Month Camapaigns like “Seizure Smart.” Their page is fairly active, with an enthusiastic community spirit.
The special thing about this page isn’t actually on it’s Facebook page, it’s in the connections to all the multiple Epilepsy Foundation branches across the US. Some of the State pages are very active, and the Epilepsy Foundation website is a fount of information for the newly diagnosed all the way through to the experienced caregiver looking for new research.
Epilepsy Support on Facebook – Groups Are the Key
This is actually a group I am fairly active in, and I have found the Epilepsy Warriors Foundation to be one of the neatest, most engaging, most supportive outlets for the fears and questions I have had about Logan’s changing seizures.
They are a fairly new Foundation, but their support is led by a few key members who have experience with Epilepsy and not only care, they understand. One of the leaders actually reviewed a video of Logan having a seizure and helped me compile some notes and questions to bring to Logan’s neurologist.
Singing their praises could go on for a few posts here at the Cafe, so I’ll just end this small section by saying this: finding some sort of support is key when you are living with Epilepsy. Whether you join the Epilepsy Warriors group or another one, I can’t challenge you enough to find one – the support and understanding you will find there can help you deal with the challenges of living with Epilepsy.
That’s it from the Cafe … Now for even More Connections:
This is where YOU come in … leave me names and links in your comments so that I can add to this page!
Let’s make this page an incredible resource for those looking for special needs connections for Epilepsy on Facebook!