Making Special Needs Connections For Epilepsy on Twitter
Making special needs connections is hard, and when you are looking specifically for someone to talk to about Epilepsy it is sometimes even harder.
Because on social media, not everyone is actually “social” – you might follow several accounts that have no current activity (let’s face it, not everyone tweets or posts on Facebook when their life is impacted by Epilepsy, right?). So, part of the Cafe’s current initiative is to help connect you with folks with various special needs, like epilepsy or autism or cerebral palsy, who ARE active in the various social media forums.
Why are Epilepsy and Special Needs Connections Important Anyway?
Being connected gives us power, to learn, to educate, to invoke change. Epilepsy takes your power away, whether you are the one with the disorder, or love someone who has it — you can’t (no matter how hard you try) always predict when a seizure will strike. You can’t dictate how severe those seizures will be when they occur. You can’t dictate whether medications will work the way you want them to.
But you can reach out. You can connect. And you can help someone else because of where you are in your own journey.
Twitter is a Whole Society of Different Folks, Including those with Epilepsy
And when you find folks who interact with you, who can help you, send you a tweet when they know you’ve had a bad seizure day (like we did yesterday; see tweet below), making those connections becomes a way to give empathy and support.
G+: So, just picked up my youngest after he had a nasty seizure at school. He actually had a couple small absent… plus.google.com/10711085785183…
— Katrina Moody (@KatrinaMoody) January 30, 2012
Quick Epilepsy Folks to Follow:
While this is just a sampling, at the end, you will find a link to my EPILEPSY LIST on Twitter, and you can find 65 other folks listed. It isn’t complete by any means, so give me a tweet with the hashtag #EPILEPSYCONNECTIONS and the @USERNAME of the person who should be included and I’ll check out their profile and tweet history!
It really does make it easier.
With that in mind, I would like to connect you with several individuals and organizations who actively tweet about Epilepsy.
— EpilepsyBlogger (@EpilepsyBlogger) January 31, 2012
Jessica K. Smith
EpilepsyBlogger – A.K.A. Mandy Krzywonski
BC Epilepsy Society
More Special Needs Connections on Twitter for Epilepsy
Do check out the Epilepsy Awareness List I created on Twitter, which includes those with Epilepsy, those who love someone with Epilepsy, Organizations and others working for a cure or to spread awareness.
It’s all about making connections:
And don’t forget the hashtag #EPILEPSYCONNECTIONS and the @USERNAME of the person you think should be included. Here … you can do it right now: