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A Special Saturday Post that Surpasses My Special Needs Children (& Myself)Each week, the Special Saturday special needs awareness campaign posts a question for anyone to answer to help spread awareness of special needs issues. This week’s question was: How has my special needs child changed my life.
That’s one of those questions that is a double-edges sword. Because your life arbitrarily changes course when you have a special needs child. In our case, our lives shifted a bit more with each child and each new diagnosis. Our lives have changed so much, as a result, that I don’t think I can point to one point or one moment where everything changed, where ‘the special needs child’ changed our lives.
Each child, special needs or not, changes the portrait of a family
Because to us, this life is like a series of snapshots, with each child born, and each new diagnosis, shifting the melody that is our life, the life of this strange and quirky Moody family. We are not the smae little family that was formed upon the birth of one child who’s eyes were almost white.
But in the same way we are also not the same family re-formed upon the birth of Andy just over a year later, when they literally thought he and I would not make it through the birth and his little body looked so very out of place in that NICU isolette.
And four years later, we were re-formed yet again after the hellacious pregnancy and birth of our youngest. Told from my first OB_GYN appointment that the pregnancy was doomed, that his heartbeat was too faint and he wouldn’t be with us for long, Logan became the heart of this family as he proved, from the beginning, that he is a tenacious fighter.
The real story of a special needs family
That, I think, is the story of this family. One of hope, of change, of reformation and love. Logan encapsulates it so well because he’s the little engine that could in capracious kid form — he has never met a challenge he didn’t know how to tackle head on. After so many years in the fight, this family is the same – we keep chugging along and never say quit.
When the deck is stacked against us, the Moody’s might make you laugh, might make you cry, but you’ll never mistake us for being out of the race.
God has blessed us with these three unique and amazing special needs children, but they are so much more than their diagnoses. You see, they are Moodys first. And with that designation they become fighters and champions in this always changing landscape we call our lives.
Has our life changed because of our special needs kids? *looks at the gray hairs in the mirror* Yep. Our lives have changed for the better, because we have been blessed, daily, with examples of what it takes to live life well despite the odds. Or in spite of them.
Why I couldn’t be silent
This was a quick post because I couldn’t let this week’s Special Saturday pass me by without offering a message of sorts. As special needs parents, we are often challenged to explain ‘what it’s like’ or ‘what’s the hardest thing’ or even ‘how do you do it’? Rarely do folks who aren’t also living the special needs kind of life get that those questions aren’t the ones really worth answering. Marking, honoring, recognizing that our lives are different, yes, but they are our own–this is something we can be fiercely protective of and try to put into words, because awareness of what it’s like to be a special needs parent doesn’t grow by being put on a pedestal , but in acknowledging that we’re living in the trenches. And it’s hard. But we wouldn’t want to be anywhere else.
How about you?
Did you participate in Special Saturday by blogging, on Facebook, or via Twitter? What’s your story about how having a special needs child has changed you, your family, your life?