Home » Jackson’s Journey – Post Hemispherectomy Epilepsy Surgery Update
I brought in my friend Caryn Haluska to share previous posts about Jackson, a 9-year-old little boy undergoing an herispherectomy epilepsy surgery after years worth of previous diagnosis were pushed aside in favor of new understanding of his medical condition.
Jackson began his recovery from this radical type of epilepsy surgery after a late afternoon surgery on Friday. His latest update from mom Gina reads:
…He didn’t sleep last night. think it was mostly the nurses coming in and things beeping etc. We haven’t gotten him to close his eyes this morning, just too much activity. He was able to visit with O and B (the sibs), Nana and Poppy, cousin Tristan and Auntie Raquel yesterday. He is extremely weak. Tires quickly and easily. He’s unable to sit up or move without dry heaving. He just hasn’t eaten enough to produce anything . They think he’s doing well in terms of the *ability* to move, but he still has a lot of work to do. His left eye is swollen shut. His face, right eye and head are very swollen. Some minor things they’re looking at in blood work that we won’t have any answers for yet. We will be moving to another room later today. – Mom as of Sunday morning.
For more up-to-date information about how Jackson is doing, or to read more information about the surgery he went through and how you can help the family, check out the Jackson’s Journey Website or Facebook Page.
I’ll be posting updates once in a while as will a few other amazing bloggers who love the St. Aubin family.
And there’s one last way YOU can help.
Are you ready?
Obviously they can still use your prayers. Jackson is doing well post-surgery but he has a long recovery ahead of him. To that end, we’re still actively looking to help the St. Aubin family in a few different ways.
First, I’d like to encourage you to sit down with some markers and/or crayons and you (and/or your kids) draw a great card or special picture for Jackson and his family to help encourage them. He’s especially fond of dinosaurs and trains. I know Andy is still sketching out trainsets for a final picture. Bobby’s even drawn a picture just for Jackson. It’s a few dots on a piece of paper … but it’s all for Jackson.
Now, you can either go to my first post about Jackson’s Journey and use the address there to send your cards via snail mail, OR you can use the Contact page here and drop me a link to a scanned in copy of it, or email it to kat AT katscafe.org with “For Jackson’s Journey” in the subject line.
For other ways you can help, try these additional ideas out:
Above all, I would be so honored for you to find ANY way to encourage and help this family. I know that this community of exceptional folks can make it happen. Now is the time!