Tales of Reality from this Special Needs Family – or Why I’m Behind in Life
(Where’s the Catch-up Switch? What … what do you mean there isn’t one?)
Seriously, I think every family gets hit here and there with the “life is like that” card, but special needs families, with our already challenging diagnoses and everyday crises … I think we’re just extra lucky in this regard.
I can’t help thinking of that quote from The Christmas Story:
Oh, life is like that. Sometimes, at the height of our revelries, when our joy is at it’s zenith, when all is most right with the world, the most unthinkable disasters decend upon us. Ralphie, narrating in the Christmas Story
Now I don’t know that we were reveling in much of anything–though we were celebrating well over the one month seizure-free mark for Logan…definitely revel-worthy. I don’t even know that our joy is at a zenith–though I like the way that sounds (cool, right?).
But all did seem like it was mostly right in our little world, which is maybe why I ignored the last week or so of worsening symptoms, why I tried desperately to drink way too much coffee. Instead I became sicker, and my Fibro symptoms went through the roof.
So this mom was brought to her knees by, get this, ANOTHER sinus infection. And, impacted wax. Because another sinus infection by itself wasn’t fun enough (That is my whining face, since you couldn’t see it).
But that’s not all that fell apart in our section of Moody-land. Nope.
Jim began feeling worse over the last week too. He got to go to the doctor as well. He didn’t get a lolly-pop, but instead was ordered to the hospital, where they decided he needed to stay for tachycardia and other fun stuff.
He’s still in the hospital. Did I mention he took the car when he, you know, went for what he thought was a doctor’s visit? So, yep, I’m here with the munchkins and no vehicle. I can send them off to school, but I can’t go see my guy in the hospital (That is my whining face again, since you still can’t see it).
Update – or what passes for NORMAL for a Special Needs Family
So, I left this post in my drafts folder instead of posting it, because I didn’t want to “whine” – and life went on.
Jim came home from the hospital on Friday afternoon.
All was right with my world.
And then, Logan spent today having seizures. One was about the worst grand mal seizure we have seen out of him in quite a while. It was horrible, I hated it, and again I say, no mother should EVER have to watch her kid change colors. Today was spent on pins and needles.
And, while we didn’t have to make that horrifying call to 9-1-1, we did have to give Logan his emergency meds.
OH, The Christmas Story (Can’t help it, we are quite addicted to that holiday classic in this house) has a quote for that … the moment Ralphie drops all the lugnuts and he says “OH, Fudge….” Only he didn’t say fudge?
Last, last, last Update in Our Very Crazy World
Logan is currently resting, and hasn’t had any seizures in well over 8 hours (prayers would be great!) and even ate a little bit of dinner. Jim is sleeping but HOME with me! My other two boys are worried about germs and cookies (not in that order…they don’t want to get sick and … Mom? Can I have another cookie?)
All is right with my world.
Until the next crisis hits.
Which will probably happen any second now.
This special needs mom is gonna try and get some sleep!
Please comment and share! Has this kind of week happened to you? Are you a special needs parent or face challenges that seem to pop up with crises all the time too?