Special Saturday | A Few of My Favorite Things …

This Life of Special Needs Parenting has its Ups and Downs

But It’s not without it’s perks

Bobb'y's Serious Face - Special Saturday moments Usually, when I have a chance to tell someone about my life, when they start to ask questions, we never have a chance to delve into what makes it worthwhile. Special needs parenting, while sometimes difficult, full of ups and downs, isn’t without its perks though.

In fact, I think having children with special needs makes me a bit more aware, a bit more sensitive, to what’s really important in life.

Our challenge this Special Saturday was in sharing our favorite things. Sometimes, as we become so used to the business of living, and we become so hardened to being special needs parents as well, we forget that there are things worth sharing, worth calling our favorites.

I’ve been lucky enough to think on this before, and I know many of you have as well. But do me a favor and stop for a moment, and really think … what is your favorite thing about being a parent? Now … if you have a child with special needs … what is your favorite thing about being that special needs parent?

Some would argue that they are one in the same. But I call BS.

Why?  Logan celebrating some of his first steps

If you have never mentally, prayerfully, bargained with God for your child’s next breath, next word, next smile … then you don’t understand how precious each of those truly is. 

When life is a battle, a struggle, that is when you truly understand how important every little blessing is. 

So … a few of my favorite things:

(forgive me if they seem basic to you, I consider each a miracle)

  • Bobby’s first smile, obviously in response to something in his little world, at closer to a year than a few weeks old … a favorite memory.
  • The first time Bobby said “I love you,” even though it was coached, a tear-inducing favorite.
  • The first time Andy crawled, and drug his poor little head because it was too busy, was still a favorite moment in our lives.
  • Andy’s first steps … it seemed like a miracle at the time … another amazing favorite.
  • Logan’s first steps, past two years old and careful, stumbling, perfect – one of those very amazing and favorite kinds of moments.
  • The first time Logan hugged me, little arms wrapped tight and clinging around my neck … absolutely perfect and a favorite.

One of Andy's Small SmilesOther equally important and favorite things:

  • Logan’s giggle – always makes me smile and so purely enthusiastic, how could it not be a favorite?
  • Bobby’s hugs? To this day a favorite not because he clings tightly, but because he forces himself, so carefully, to lean up against you and relax…even though the process is difficult for his sensitive self.
  • Andy’s smile … a little lopsided and always wide across his face … absolutely breathtaking … and a favorite.

This post is about a few of my favorite things, but these are really THE things … the ones that make life worth living. 

How about you? 

What are a few of your favorite things, the things that don’t win awards but are equally precious and amazing.

Are you a special needs parent as well – do you find that some of your more favorite and smile-inducing moments are the ones others pass by in the course of living their lives?

 

Katrina Moody

Katrina Moody

Graphic Designer, Wordpress Addict, Blogger at Kat's Media & More
I'm a special needs parent before just about everything else in life, but also a passionate advocate for my three boys and husband, who all have a bit of awesomeness about them. Awesomeness = Axenfeld-Rieger Syndrome, Autism, Epilepsy, Dyslexia, Cerebral Palsy, and more. It all adds up to some awesome kids and an amazing family.
Katrina Moody
Katrina Moody
Katrina Moody

Latest posts by Katrina Moody (see all)

  • http://specialmomspace.com Michelle

    Hi Kat-

    Thanks for sharing your favorite things. It’s so important to be thankful and to reflect on those things that we are truly appreciative of.

    Here are some of my favorite things:

    *When my CJ closes his mouth and smiles (He just learned how)
    *My husband’s undying devotion (My son is not biologically his but he cares for him like no other)
    *One Life to Live (darn why did they cancel it LOL)
    *My daughter’s independence. She’ll be 17 in a few weeks and she’s working now. She’s so good with going after the things she needs in a respectful way. She will start college next year and continue to work.

  • http://wiseanticsoflife.blogspot.com Kristen

    I don’t often think of my children as having special needs, even though three of them have ADHD, including one who is bi-polar and another who has severe anger control issues. Reading posts like this one makes me ashamed for getting frustrated. I have so many positive things to be thankful for. I really admire your attitude.

  • http://www.waytenmom.blogspot.com Paula Kiger

    Hi and congratulations on being a featured Voicebok member this week! Thank you, too, for sharing this post and your very true thoughts. (And to answer one of your questions, I am not a special needs child’s parent.) To answer your other question, I think the special things are times so common that they don’t make our blogs or our diaries ….. I have always believed that “quality” time is a bit of a myth – there has to be a certain AMOUNT of time spent with our kids to build them strongly. My sister in law died in her sleep at age 30 – kids were 6 mo, 3 yrs, 6 yrs. I remember my brother in law telling me shortly after about walking the 3 year old into preschool -it was a typical, sunny, fresh morning. He said he teared up at holding his daughter’s hand, seeing the sunshine and hearing the birds sing. Routine but special, for sure.

  • http://yogi-mommy.blogspot.com Shanan

    I am not a parent of a child with special needs, but I used to work with future Special Education teachers and their passion and drive to work with students with special needs always left me in awe. It gave me a lot of hope that the future of education will only go up.

    Some of my favorite moments with my daughter:
    -when we go to the park and she insists that I got up on the slide with her.
    -when she runs up the steps to the playground equipment then turns and smiles at me.
    -every time she says “I Love My Mommy”

    Shanan
    http://yogi-mommy.blogspot.com

  • http://bzoohomeschool.blogspot.com/ April

    Great post! Each child is uniquely designed, and we as parents have to love each of them uniquely. My favorite is hearing the word “mom” – it signifies my special place in this life right now.

    Visiting and following from VB.

    April

  • Jennifer

    Jorge always gives me hugs. Sometimes they are little hugs, and sometimes he climbs on me and gives me a “monkey hug”. I give him my rendition of a hug back, even though he has autism and I don’t know exactly how a hug effects him. All love is give and take.

  • http://rozkwalker.com Roz K Walker

    Katrina, I love this post. So beautifully written…I fell in love with your boys through your post. I’m sure they are special because it sounds like they have a special mom/wife.

    Congrats on being featured on voiceBoks! I look forward to reading more of your posts.

    Roz

  • Amber

    Amen to this post. It does have its ups and downs but it has it’s perks. This past weekend I took my Autistic daughter to see my sister in the play Miracle on 34th Street. It was bad. It was way to much for her. I was in tears at one point. But then at the very end we got to go to the cast party at the planetarium. It was there that I got the perk. She gave me that sweet loving look.

  • http://rebecca-hawkes.blogspot.com/ Rebecca Hawkes

    Great post. Great site. (I’ve been hopping around a bit.)
    Congrats on being a VB featured member!

  • http://travelwisconsin.us/ TracyAnn0312

    Hi Kat! I’m just new to your site. Thanks for sharing some of your favorite things to do. You know what? I’m also a parent and I know that it is very hard to handle them. But my son is my only treasure in the world.

  • http://www.christiansupermom.com/blog Rosann

    Kat, you have a wonderful way with words and touch on a subject many parents can relate to. I don’t have a child with special needs but I personally know a handful of parents that do. It’s not easy. I’m glad you are an encourager to others in that situation.

    By the way, congratulations on being a featured member at voiceBoks this week. :-)

    ~Blessings,
    Rosann

    • http://katscafe.org Katrina Moody

      Thanks so much Rosann! I told myself a long time ago that I would do the best I could with what God has given me – and He has blessed me with these beautiful boys so how could I not learn and grow from being their mother!

      And thanks for the Congrats!

  • http://www.marisafrank.wordpress.com Marisa Frank

    What a beautiful post. I love your postitive attitude. Being a parent can be trying at times but is the most rewarding thing at the same time. Thank you for sharing some of your favorite things. Congrats on being a featured member on VB.

  • http://www.mommyladyclub.com Courtney~Mommy LaDy Club

    I really admire your strength. Parenting is the toughest job around, but adding the challenge of special needs takes so much more. Thanks for sharing your favorite things, and giving others hope, who meet your same challenges.
    Cheers from vB!

  • http://www.queensnycmom.com queensnycmom

    Thanks for linking up. I am now following you back.