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I am More Than a Special Needs Mom Too
Like All of You, I am More … But I am also Less
When you have kids with special needs, when you are this entity called a special needs mom, or parent, it’s easy to get lost in the craziness of life. In the stress of living from one crisis to another (quite literally) you forget about the dreams that once made you into the person you are. You lose a bit of yourself.
I’m more than that, and you are too. Because we are special needs parents, but we’re made of much tougher stuff than that. It’s just, we don’t always remember that, do we? We get so caught up in living that we let go of a bit of ourselves. Just a bit. Here and there. But after a while, all those bits and pieces add up.
And we get lost.
Fulfilling an Obligation | Versatile Blogger Award | Finding Me
So part of winning the Versatile Blogger Award (um, yeah, still *YAY* over that one!) was that I had to share 7 things about me. Now most the other folks who have won this award did the acceptance speech thing, the about me thing, and then listed 15 awesome blogs to pass the award on to all in the same post. Me? Nah. I like to be different. (And wordy … did I mention I like to talk?)
My last post – that was all full of acceptance speech goodness, including the thank you to those who nominated me. This one, it’s about finding me. So who the heck am I?
You know the best parts already. I’m a wife. I’m a special needs mom. I’m a writer, an editor, a dreamer.
But you want the real dirt, don’t you?
Who am I? More than A Special Needs Mom, but Not
- Tell you a secret. I’ll always be defined by the fact that I’m a special needs mother. It has changed me so much – it has changed me from the young woman I once was into the mommy, and the person I am today. Here’s a fact from the past to celebrate the change. I first entered IU-Bloomington many moons ago as a Journalism student.
- Sometimes, you run away from life. And sometimes it runs away from you. Just a few short years after first starting for my first degree, I left school to get married, have kids, and get away. I meant to go back. But it took me over 12 years to do so. This thing called life kept getting in the way. That’s a whole mess of a secret I never tell a soul – and it’s part of what makes me who I am.
- Life changes you. Molds you. Mends you. Hurts you. And folds you into something new. When I turned away from journalism, I kept a part of my soul and nurtured it just a bit through the years. I was and always will be … a writer. So, here’s a fact from the present to mark where my passion stems from: I’m taking a semester off right now, but I am one of those ‘returning college students’ and working toward a BA in English, and a certificate in non-profit management.
- Sometimes, when life keeps throwing things at you, pushing you, pulling you–you break. I’ve developed into the advocate and special needs mama I am because I broke. Once, after Bobby and after Andy, and after one too many diagnoses, I crashed emotionally. I thought my children would be better off without a broken mother. And I tried to take myself out of the equation. I’m not proud of that time.
But I’ve done a disservice to you by not talking about it. Because you can’t be a super-parent all the time, sometimes you break. One little secret and a fact not many know about me, but more should. You grow into the person you are, you aren’t automatically strong enough to handle everything life throws at you. Not all of us, anyway. Sometimes, you break.
- I like to think I’ve grown. Over the years my need to help others, other families dealing with some of the same things we have, has grown into some different ventures. The first is still in development, and is called The Rarelink. I’m still working on the 501c3 paperwork, but you can learn a little more at my Facebook Page for The Rarelink. My second venture, directly relating to the rare syndrome, Axenfeld-Rieger Syndrome, that my boys have, is being a part of the planning for the new Axenfeld-Rieger Association. You can learn more by visiting the Facebook Page for the Axenfeld-Rieger Association.
- I do volunteer work for several charities and causes online. You know most of the ones I care about, as I list them as Causes of the Week here at the Cafe and hope that you will find the want, the need, to help them as well. I help with a few different campaigns, including the Special Saturday project over on Facebook and Twitter, and more recently the Riot Rebuild project over on Facebook. You can see a bit more about each of these projects by visiting their respective Facebook Pages as well. From there, find links to their sites and find out how you can help if you want.
- Until recently I worked exclusively through Elance. But I have recently broadened my availability, and trained extensively in social media, so that I can specifically help with social media management and social media optimization. I am a copywriter and copy editor, and you can learn a little more about me by visiting my Facebook Page for my Writing – Kat Moody Writes. I’ve been blessed to be able to work from my home, and around the schedules of my kids and husband.
And that’s it. Iknow – I’m really not all that exciting. But it was past time for me to share a bit of myself with you all. Don’t be too scared! Yes, I’m a special needs mom, and that makes up a large part of who I am, but I am so much more!
How About you? Are you more than a special needs parent, more than a mom or dad?