Why I Blog About Special Needs Parenting, Autism, Epilepsy #NHBPM

WEGO’s National Health Blog Post Month – Day 1 – Why I Blog

Special Needs Parenting is Sometimes a Selfish Job

First post for the National Health Blog Post Month with WeGoIt sounds trite to say I blog because I know I can help others. Now, after living, breathing special needs parenting for almost 14 years, it just seems to encompass so much more.

When I first started blogging, almost 3 years ago, I blogged for myself. No one read my journal (I didn’t call it a blog), except the odd person lost on their way to more exciting things — but I was sporadically inclined to write about coming to grips with being a special needs mom.

And I felt so alone.

Some of my oldest posts back then were short little rants about the merits of repetitive questions, the craziness of trying to avoid being depressed because of all the stress of having three kids with awesomeness. They were all about me. (nothing wrong with that – I recommend parents journal to find this inner voice of their own, actually!)

I didn’t realize for the longest time that my blog could be a voice I could use to help others.

When I moved, refocused, and re-opened Kat’s Cafe almost a year-and-a-half ago, I started looking outward to all the other parents I knew could use my experiences, my struggles, and my reality.

The reality?

The reality is that we try so hard to be amazing and perfect parents, to make our children meet their potential and strive beyond it, to make every appointment and therapy goal … we try so hard to do this, that life becomes overwhelming. At the time, I had a hard time finding anyone who wrote as if they understood what I was going through.

Because being a special needs parent?

It isn’t always this amazing blessing that we are thankful and overjoyed to share with people. Sometimes it is an overwhelming nightmare. The pressure, most of which you put on yourself, to do everything other parents do, but do it better; the pressure to push and encourage your child to defy the predictions of doctors you still have nightmares about …these pressures build up over time.

I am a mostly positive kind of person, so feeling overwhelmed was (and still is!) something I can move beyond. But not all parents are to that point yet. And if no one can tell them that what they are feeling is normal … if no one can tell them that they aren’t a horrible, bad, no-good excuse for a parent because they sometimes hate autism or epilepsy, the pressure can become more than they can bear.

I blog now because I know I can help others. I can help other special needs parents, other folks who haven’t even been touched by a child with special needs. I can share my story, our story, and I can help them see about life from my point of view.

Advocacy and Awareness are gained when you can emotionally connect with your readers, when they can literally see themselves in your shoes and decide they want to be passionate about your cause, your story, too.

My hope is that the Cafe is a place where people are motivated to understand, to advocate, to learn, and to grow in their knowledge of what special needs parenting is all about, how they can help, and what they can do to advocate too.

I want to share my passion with others.

Blogging gives me my voice and the ability to do that.

How about you? Do you blog about something you are a passionate about? Do you blog more for yourself or others? Are you a special needs parent or blogger? What’s your story?

Katrina Moody

Katrina Moody

Graphic Designer, Wordpress Addict, Blogger at Kat's Media & More
I'm a special needs parent before just about everything else in life, but also a passionate advocate for my three boys and husband, who all have a bit of awesomeness about them. Awesomeness = Axenfeld-Rieger Syndrome, Autism, Epilepsy, Dyslexia, Cerebral Palsy, and more. It all adds up to some awesome kids and an amazing family.
Katrina Moody
Katrina Moody
Katrina Moody

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  • http://www.foodfoodbodybody.com Susan

    Hi – I came to you via the NHBPM writing challenge. It’s great for me to meet other bloggers who are writing on totally different topics. I also started blogging 3 yrs ago and started out totally “for myself” and have found an amazing new community of support and friendship. Looking forward to reading more…!

    • http://katscafe.org Katrina Moody

      Susan – I get that! The community of support and friendship is so amazing within the special needs community!

  • http://insideamothersmind.com Thuy Yau

    Hi Katrina,

    That was so lovely to read. I have 3 young children and all of them have speech impairments, so I can definitely relate. I’ve had to juggle between speech, physio, OT, paedetrician appointments since they were born as well.

    I’ve always loved helping others so I started blogging to help other parents. Then I decided to change to blogging about personal development, because I wanted to help all kinds of people.

    Because of my blogging, I’ve now realised my dream to be a writer and I haven’t been happier.

    It is amazing what a difference our writing can make to people’s lives! :)

    • http://katscafe.org Katrina Moody

      100% agree Thuy – when you’ve worked hard on behalf and with your children blogging for yourself becomes blogging for others as we naturally gravitate towards others sharing our experiences.