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New Diagnoses are Hard, How to Find Peace in the Storm
New diagnoses are downright scary. Finally getting answers to all our questions shouldn’t be. Finding answers should be reassuring and bring some measure of peace. But it rarely does. I learned this the hard way, as one child after another gained new diagnoses over the years. I was sure nothing could scare me anymore. But…
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Today is Day One
After Five Months Seizure-Free Logan Went Down He went down in the middle of the local Goodwill store, to the shock of at least one man, who asked if he was okay as I was jumping over obstacles to get to him … and with one seizure Logan broke a five-month-long answer to prayer. Living…
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Link between Epilepsy and Autism
Note from Kat – Jessica is one of my go-to friends for Epilepsy support – she was one of the first people I reached out to online when I was new to dealing with the diagnosis and the overwhelming information out there. Sometimes, facts say it all … welcome her to the Cafe and help…
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I’m Famous! Or Epilepsy Awareness and Depression
In honor of Epilepsy Awareness Month I had the chance to chat with Michelle Fischer, who broadcasts A View from My Window on the Indiana ARC website. Her hour-long interview with little ‘ol me, A View Into Epilepsy, was uploaded today and I encourage you to listen to it. The Story of Me — Why…
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Why I Blog About Special Needs Parenting, Autism, Epilepsy #NHBPM
WEGO’s National Health Blog Post Month – Day 1 – Why I Blog Special Needs Parenting is Sometimes a Selfish Job It sounds trite to say I blog because I know I can help others. Now, after living, breathing special needs parenting for almost 14 years, it just seems to encompass so much more. When…
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Our Epilepsy Reality Bites – Regression and Worry for Logan
Epilepsy is Far from Benign; Sometimes, our Reality Bites About three weeks ago, Logan had what we call a “bad seizure day” – as many of you already know, he has epilepsy and tends to have grand mal seizures as well as complex partial seizures. This day, he clustered – which meant that we spent…
