Just a note:
Some of my entries are from a while back. As a bit of an introduction – this is from the archives, from 2008, as we were just beginning to deal with Logan’s seizures while at the same time struggling to understand Bobby’s as well.
Things get better.
From the Archives: Mar. 19, 2008
Looks like Bobby had a weird kind of seizure at school today.
He had it about the time they were heading for something special, PE I want to say. He kept losing track of what the teacher told him to do, and his eyes glazed over and he even bumped into the doorway at one point.
As she described it, he was totally out of it and she had to keep telling him what was going on, because he kept forgetting (or wasn’t hearing it in the first place)Afterwards (darn, I forgot to ask how long it lasted) he was scared and wanted his teacher to hold him for a little bit, which is fairly standard seizure fare for him.
Crap and double crap I wanted him to stay seizure-free for a while. I’m going to hope this was an isolated incident and pray that no more crop up. ‘Cause I gotta say, Bobby having partial seizures on a semi-regular basis – SO not fun and kind of scary.
They’re different from Grand Mal or even the type that Logan has – these present differently a lot of times and leave Bobby confused and scared. He just can’t understand what’s happening to him and I don’t think has the words to explain it so someone can tell him. Autism makes it more difficult, since seizures present differently for him a lot of the time, we can’t just say “this is a seizure” because he would want to know anything that could be a seizure, he’d start obsessing, and then all of a sudden we have an excitable kid who will automatically be more prone to having the seizures because his threshold will be lowered (because he’s in more danger during times of high stress).
Logan’s Sick … again
I had to cancel Logan’s therapy because he’s sick, and we’re back on breathing treatments with him *yawn*.
Seizures affect our lives in so many ways. Reading this a few years down the road, I’m struck by how much our lives have changed and yet, in many ways, by how many ways they have stayed the same.